Sunday, February 21, 2010

What's Next?!?

William came home from the hospital, on Thursday a week ago, and it seemed to be an uneventful week...FINALY! Just kidding...Thursday night, William was back in the ER with a broken leg. That's right, I said a broken leg. He was playing in the living room and fell just right (or wrong) and has a spiral fracture in his right femur. He now has a 'half-body' cast, from his toes to his hip, covering his right leg, and partially covering his left thigh, with a stabilizing bar connecting the two. Here is a picture of our little guy, with his new blue accessory:


We are not sure yet how this new development will affect whether or not William will recieve the final round of antibodies. Of course we would like for him to benefit from as much treatment possible, to kill the cancer; but we are also aware of the fact that he tends to swell (retain water) with the antibody treatment. He will not be able to swell with a cast covering over a quarter of his body. We are asking everyone to pray for the doctors to find a way for William to finish the treatment (giving him the best chance of survival) without compromising his current health.

Reilly is doing much better with his glasses. He still doesn't like them but will tolerate them for longer periods now. I took him to his 12 month wellness check, last Friday, and he weighs 26# 12 oz and stands 31 inches tall. I think he is going to be one big dude! He still isn't walking completely unassisted but is getting there. I think he has more teeth coming in too since he is drooling buckets. Here are a couple of pictures from his birthday:




Sunday, February 7, 2010

Three Week Update

Well, no news isn't always good news but here is the latest and greatest...

3 weeks ago, William spent two consecutive days in the ER, with fever, and eventually was admitted with an infection, in his central line. And, to top it all off, Reilly got ahold of some strep, the day before his first birthday. Reilly, part of my Houston family, and I spent his b-day quarantined to the house with chocolate cake and presents! I will post pictures later in a separate post.

Will's infection was cleared up in a few days and he then began his 4th round of immuno-therapy/antibody treatment, on schedule (two weeks in the hospital). During the last two days of the second week, everything was sailing along until his upper-lip swelled up 3-4 times larger than his bottom lip. VERY SCARY! He ended up in PICU for 24 hours, under strict surveillance, to finish up the therapy. Thank God it is finally over.

Now he has three weeks off (well still on Accutane, at home), followed by one final week of antibody therapy. Then he is done...did I say that clear enough?!? He will be done. Done Done. It is hard to believe. All of the prayers have paid off! Thank you all for contributing!

Love, Angela