Wednesday, November 25, 2009

Many Thanks...

Well, tomorrow is Thanksgiving Day and I feel like we have a LOT to be thankful for. This morning I was on my way to work and I was listening to one of my favorite songs, "We Live" (right click and Open in a New Window) and I just felt so blessed for my life. I have a wonderful husband that spends every day taking care of our two beautiful boys who are healthy, growing bigger, sweeter and more precious by the minute. I have a loving family and friends who support me and a work family that is just as supportive. I am thankful for all of you. And most importantly, I'm thankful for a loving and forgiving God. I'm not perfect (yes, I said it and put it in writing) thankfully my God loves me anyway...it doesn't get more unconditional than that. Life is such a gift. So in the words of Superchick, "Get out and do what we we're meant to do. We live. We love. We forgive and never give up. Cuz the days we are given are gifts from above and today we remember to live and to love."

So, hug and kiss your family. Ask for forgiveness for your sins and thank God for all you have.

I would like to say Thank You to my best friend Amy Carenza-Offerdahl for organizing a relay team for the White Rock Marathon and raising money for William. Her team is called, "A WILL to Run" and here is what she is doing...

"In an effort to honor the strength William has shown us through these trials and raise support for his continued medical needs, the immediate family (and me) have decided to run the White Rock Marathon as a team. William's mother, father, aunt, uncle and me (the surrogate aunt) will be running on December 13th under the team name, "A WILL to Run." We are asking our friends and family to support us at this event by either sponsoring the team per mile or with a flat donation...there is no minimum or maximum gift - any amount would be appreciated.

If you're interested in supporting the team, please make your check out to "William Fallon Neuroblastoma Fund" and mail directly to my attention at the address below. Thank you so much for your consideration of this important cause.

Amy
Amy Carenza
SVP, Senior Client Manager
Middle Market Banking
901 Main St., 10th Floor
Dallas, TX 75202
214.209.0316"

Second, I would like to kick some shouts out to the Chiliheads in Albuquerque who supported their local Relay for Life, in honor of William...what a blessing from people who we've never met!

Finally, I would also like to thank our neighborhood - La Cantera. The entire neighborhood is hosting a 5K in William's honor, on December 12th. Here is more information:



Love, Angela

Friday, November 20, 2009

Maintenance Therapy

I've mentioned before that William is continuing with a maintenance therapy of antibodies, immunizations and oral accutane. If you would like to read more about said therapies, you can click on this link for a better explanation: http://www.curesearch.org/our_research/index_sub.aspx?id=7368

Right now he is taking accutane and visiting the clinic twice a week. His next round of antibody/immunization treatments are scheduled to start Sunday, after Thanksgiving.

Finally, here is a picture - from last night - of the boys in their matching jammies (courtesy of Nana)...
Love, The Fallon Family

Monday, November 16, 2009

On the home front...

William came home Friday afternoon so the whole family is home now...just in time for me to go on a business trip. :) Will looks great but he is still fussy and not feeling 100%. He goes in for a clinic appointment today and again on Thursday, just to check in. He will start the next round of antibodies, in two weeks.

Thank you for your continued prayers.
The Fallon Family

Tuesday, November 10, 2009

Update on Antibodies

William started the antibody therapy on Monday, and as we thought, he is in a lot of pain. Every day the doctors have to find the right mixture of morphine, Benadryl, Tylenol and Ativan. He is having mild allergic reactions and sometimes when he sleeps, his blood pressure will drop significantly low. All of his side effects have been manageable so far. His cocktail of medicines makes him sleep most of the day but wakes up starving at 2am (meaning Aaron is getting much sleep).

Thank you for your continued prayers - Reilly has recovered from his "jock itch". Please continue to pray for William's health and some rest for Aaron.

Monday, November 9, 2009

Graduation Speech - As Promised

Ladies and Gentlemen, Distinguished Guests, Faculty, Administrators, Friends and Family and, of course, the graduating Class of 2009. Good evening. Well Here we are. WE DID IT! You know it’s funny to think of myself as a college graduate. When my brother graduated from college he landed this great job with a commercial airline. So he shows up on his first day at work and his manager greets him with a warm handshake, and he hands him a push broom. He says “your first job will be to sweep out this hanger.” So my brother gets a little irritated by this and says “but sir I’m a college graduate.” And his manager, taking the broom from him, says “Oh, I’m sorry let me show you how to use it.”

In all seriousness it’s a big honor to be speaking to you tonight. A great deal of work has been done to get us to the point where we are this evening, so a few thank you’s are in order. To our professors, who throughout the years here at Embry Riddle have taken great pride in the academic success that we are enjoying tonight. Like many of us they have careers and work during the day, however they always go the extra mile to teach and give a real world, outlook to ensure our success in today’s demanding world. For that, thank you for your love and for your efforts. Thank you to the ladies in the registration office. Your guidance and administrative support is the backbone of our Fort Worth campus. Thank you to our classmates and friends that have been with us on our educational journey. They have been there with us in the good times and the laughter, but also in those tougher moments of family or personal crises. And most importantly our family, especially our spouses that have been there for us. They have supported us all these years picking up the slack while we were in class. Our parents that love us, care about us and continue to have huge dreams for us. On behalf of the class of 2009, thank you all for the combined efforts of our academic success. A big mental hug to you all. Finally, 2009, when you have a quiet moment in prayer, say thanks to your Maker, for he fashioned you and molded you and gave you the skills and talents you have been developing all these years.

For me, tonight is an accomplishment that less than a year ago seemed more than a million miles away. You see, in January this last year, my son William was diagnosed with a rare form of cancer and had to stay in the hospital for a very long time. This all happened at the same time my youngest son was born 6 weeks premature. I had both my sons in the ICU at the same time and, then and there, school was the last thing on my mind.

Over time, with the help modern medicine, and a whole lot of prayer, William began to get better. He was put on a year-long protocol that consisted of aggressive chemotherapy, surgery, a bone marrow transplant, radiation and finally immuno-therapy. I spent many nights at William’s bed side with little sleep and the feeling, THIS, that tonight was not going to happen for me, and for that I am so thankful, to God, my wife, my family, my friends, and my family here at Embry Riddle. I’m also grateful to people who said a prayer, who wished us well and went out of their way to make a small difference in a little boy’s life, and by extension, a huge difference in my life and the life of my family. It’s that element of the human spirit that I wanted to address here tonight.

When my son got sick my wife encouraged me to study, and keep on keeping on during a time when giving up on classes would have made life much easier. Of course my job was, First to make sure that William was getting the best treatment possible, and second to make good grades in school. So this became a real learning experience for me. On one hand I was studying and writing research papers on aviation safety, and on the other I had to learn everything I could about my son’s disease. I studied all the new innovative and cutting edge technology to make sure that he was getting the best treatment possible.

When word got out about my family’s unfortunate situation, we had people from all aspects of our lives offering their help and prayers. My wife’s work started a foundation and donated money for medical bills, cooked meals and brought us cleaning supplies. At the same time my boss, co-workers, and people I didn’t even know donated their hard-earned leave so that I could be with my boy in the hospital and not be without a paycheck. These are just a few of many kindnesses bestowed upon us in our time of need. I bring all this up for 2 reasons tonight, the first is to say thank you. I know that without their love and support there would be no diploma for me. The second reason is to encourage everyone here this evening to be the kind of people who pro-actively look for opportunities to make a difference in people’s lives. After what has happened to us, it is my hope that we never again pass up a chance to do something for someone in need or to be an angel when one is so desperately needed.

In his epic poem Ulysses, Alfred Lord Tennyson wrote that “heroic hearts are made weak by time and fate, but they are strong in will, To strive, to seek, to find, and not to yield”. I would like to challenge everyone here tonight to find that heroic heart, that momentum to know that as you make your way out into the world tomorrow that you have left it a better place than when you’ve came in, that you’ve changed someone’s life for the better. My life has been changed for the better. My boys are both doing great and I cherish every moment I have with them. And so this evening, I wish all the best for my fellow classmates, the 2009 graduating class of Embry Riddle. May the dedication and devotion we have put into our studies here, reward each of us with success and a bright future. And when the time comes, may we be able to say that we have lived life to the fullest and that we did it deliberately. And if the chance ever comes to make the difference in the life of a fellow human being, it is my sincerest hope that we do it willingly and with our whole hearts. Thank you.

Graduation + Antibodies

Well, Aaron may have a couple of classes to finish but he has officially "walked". Like I said before, he was the student speaker for his graduation and did a great job...so great that he received a standing ovation. I will add his speech as a separate post later for those who want to read it.
William got a 6 hour pass to see his daddy speak and walk across the stage...

William will start antibody treatments today so please keep him in your prayers. We understand that the treatment is very painful. When the antibody attaches itself to the surface of the cancer cells (which are nerve cells since neuroblastoma attacks the sympathetic nervous system), a message is sent to the brain and the patient will feel pain. The pain can be localized to one place or felt in many places. Considering William's tumor was in his left side, I would assume that most of his pain will be in that region. Other potential side effects include high blood pressure, vomiting, and severe allergic reactions. Please pray that these side effects are minimized or non-existent.

More to come as Will goes through this new therapy...
Love, The Fallon Family

Wednesday, November 4, 2009

Checking in...

Sorry it has been a while since I've posted an update. It has been a really crazy couple of weeks and I'm a little tired. So, forgive me for writing like I talk and keeping it short...or as short as possible.

First, William's EKG came back completely normal. In fact, we think that the first doctor didn't read his chart completely, to realize that Will currently has a central line (looks like a flexible white tube that splits into two) in the right side of his chest and his metaport (looks like a small cylinder, the size of a bobbin) in the left side of his chest. The thickening (or possible clotting) that showed up in William's scans were due to the two lines in his chest. His heart is healthy. Praise the Lord! Another scare dismissed.

Second, I know I posted that William was supposed to start his antibody treatment on Monday but that has been postponed a week. The boys were planning to go trick-or-treating on Saturday but William woke up from his nap shivering, with a 102.6 degree fever. By the time we got to the hospital (less than a 20 minute drive) it had spiked to 105. He received some Tylenol, fluids, started antibiotics and was admitted to the Oncology floor for observation. He hasn't had a fever since Sunday but will continue antibiotics for 10 days.

So! Thank you all for your continued prayers. William will still need prayers to fight his infection and hopefully will not have an allergic reaction to the antibody treatment. Also please pray for Reilly as he is fighting off a stubborn yeast infection (almost two weeks now)...it's always something. And pray for Aaron and I as we spend almost two weeks apart and are both exhausted. A quick praise: Aaron is walking for his undergraduate degree this Friday and they asked him to speak at the commencement -- what an honor! His speech is about the journey we've been on, over the last year and how he has persevered to finish his bachelor's degree at the same time. It's going to be great and I'm so proud of him!

Love, Angela