The last 24 hours have been very positive. When Aaron met with the surgeon yesterday, the surgeon mentioned that he did not feel like William’s mass could be neuroblastoma (NB) based on a few things. This surgeon operates on more than just children with cancer. He said the shape and location of the mass is similar to other children that run into something, broke some blood vessels and build up scar tissue. The mass is near perfectly circular; William’s initial mass was lumpy with tentacles. Also the mass is very close to the skin and a long distance from the original tumor. Usually a child must have cancer in their bone marrow for a new tumor to show up in a place not in, or adjacent, to the original tumor location. William never had NB in his bone marrow. The mass could still be tons of other things. The surgeon said the soonest he could remove William’s mass is Friday. We are signed up for 815.
Today William had his MIBG scan and to our surprise the surgeon decided to watch the radiology techs perform the scan. He stepped out towards the end of the scan to tell Aaron that so far, nothing has lit up…meaning, no NB! At that point, the scans were not final but this news was a breath of fresh air. Our plan is to remove the mass, send it to the lab for analysis and not put a port back in!
We are still praying that the mass is not a malignant tumor of any kind.
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