Neuroblastoma is a cancer which affects kids like me.
I often find big words like "neuroblastoma" are much less scary whenever I learn a little more about them. So, help me demystify this unknown beast into something manageable by learning with me.
Wikipedia Article
http://en.wikipedia.org/wiki/Neuroblastoma
My Hospital
http://www.cookchildrens.org
A Support Site (One of my nurses knows the kid on the front page! That's how fantastic and well connected my medical attention is!)
http://www.nbhope.org/
Hi guys! We're another NB family from Cook. You are in a great place and have a built in support system! We have a group of NB families call the L.O.V.E. club in honor of 4 little girls that had NB. You can read more about us at www.nbloveclub.blogspot.com. My son Lukas was diagnosed Nov. 19, 07 with Stage 4 Intermediate Risk. His site is www.caringbridge.org/visit/lukasmacdonnell. We have also started a foundation with the LOVE club to help fund the NB Program Dr. Granger is working on at Cook and for family support. You guys will be very well taken care of :)
ReplyDeleteHope we can meet soon, we've been there, done that and are still going strong. Lukas has been NED (no evidence of disease) since July 3rd!
Heather and Super Lukas